Good morning everyone. This is week number three in my
second cycle (one cycle = treatment every week for three weeks, then rest a
week), and I am sitting in my chemo chair hoping to get drug today. This particular chemo has been pretty easy
for me, but it drops my already meager platelet count low enough that I have
had to skip weeks. This cycle, I have
received drug two weeks in a row, which is a miracle, and I was hoping for
success this week too. Unfortunately, I
have just learned that my platelet count is 30,000, too low to give drug
safely. My other problem is that my
hematocrit is also quite low, so I am settling in for a long day of waiting for
blood to be typed and crossed and then given.
Weirdly enough, I don’t mind sitting here. The new cancer center is lovely. My chair is heated, I am reclining, I have my
computer and a cup of coffee, and there is no one around. I am in my own little niche and no one
bothers me. This set up is quite nice,
actually. I really couldn’t tell that my
HCT was so low. In fact, I felt so good
that I even went to Pilates on Tuesday.
I have been unable to move since then, but it was exciting at the time.
Ok, so both of my kids have gone back to school and I have
been feeling sad. We had such a nice
holiday break together. Neither kid felt
quite ready to return to school, either.
Our oldest had been in Spain for the Fall semester, and his growth and
maturity were such a pleasure to see. He
felt very differently about going back to school after his experience overseas,
too. My sister and I drove with him up
to Connecticut, and he talked about being both anxious and excited to
return. Then he took off in my car for
the wilds of Maine. And guess what? So far, he is happy and healthy and living in
a very different environment than last year and feeling truly engaged in his
higher-level classes. I’m so proud of
him, I can barely stand it.
Our youngest also had a short break as she went back a week
early to rush. I have no idea what this
sorority thing is about, but she too has matured so much in one semester. I trust her judgment and know she will find a
house that she can love. She even came
to chemo with me over the holidays. She
made me pancakes and then came with me and sat through the infusion. I have had cancer since she was 2 years
old. I have had chemo about 6 times in
different forms. We talked about this
disease that haunts me and is a constant for her, and there she was, this
beautiful young woman, talking and laughing, sometimes being sad, but so getting
it. She is amazing.
So I’m feeling their loss a bit. Endings are hard for me, and they just seem
to keep coming. I am sad, but don’t get
me wrong-- I am relieved as well -- that I am truly retiring from Case as a
Society Dean. I really went on leave
without a clear plan for return. Now I
have one; I am not returning. Chip and I
cleaned out my office during the break, and this process was hard. I felt both extreme relief as well as
sadness. All the work in all the file
cabinets went into the trash; I will not be using any of it again and it is all
out-dated anyway. But all the pictures
of my classes of students and the lending library I had, and other things
reminded me of how much I loved the students.
All of this felt right, but sad too.
So, let’s recap--no job, no kids, no platelets, empty
house-- boy, do I need some light!
I flew back home to Cleveland from my sister’s house in CT
on Monday. By Thursday, I had found my
house again and things were quiet and cleaned up, and I have had time to think. Both kids are happy again where they are, and
that really helps the darkness. But I need to sweep out some
of the heaviness in my heart and make room for light and opportunity.
Truly, I have never felt more creative or supported as I do
now. When I am writing or doing art with
my group of buddies, I feel that light. My
sister, my wonderful friend Betsy, and I are preparing for a trip to Ireland in
June. The readings and classes for the
trip are helping me realize that Celtic mythology has played a huge role in
many of the books my sister and I have been reading together. I think this trip and all its background
reading, including a lot of Yeats’s poetry and plays, will give us new ideas
for that druid mystery book we are destined to write together (ok, and become
rich and famous from). I have even
started thinking again about that tattoo I have always kind of wanted. My kids cringe when the T word comes up, but
I am going to do it. I think a celtic
something is destined to appear somewhere on my body…..we shall just have to
wait and see.
So I am looking for light, and when I dig deep, I know I have
some. Even though my blood-work doesn’t
show it, I feel better than I have in months.
My physical pain has improved a great deal, and my psychic pain, while it
continues, feels like it is undergoing a profound change. Darkness allows even the smallest flicker of
light to show. Maybe only from being in a deep, dark place, can I begin to see my
own light a little. Now, from right down
here, I need to claim my light and illuminate my own darkness. Time to claim the power! I’ll work on that. How about some poetry?
The Gift (Mary Oliver)
After the wind-bruised sea
furrowed itself back
into the folds of blue, I found
in the black wrack
furrowed itself back
into the folds of blue, I found
in the black wrack
a shell called the Neptune -
tawny and white,
spherical,
with a tail
tawny and white,
spherical,
with a tail
and a tower
and a dark door,
and all of it
no larger
and a dark door,
and all of it
no larger
than my fist.
It looked, you might say,
very expensive.
I thought of its travels
It looked, you might say,
very expensive.
I thought of its travels
in the Atlantic's
wind-pounded bowl
and wondered
that it was still intact.
wind-pounded bowl
and wondered
that it was still intact.
Ah yes, there was
that door
that held only the eventual, inevitable
emptiness.
that door
that held only the eventual, inevitable
emptiness.
There's that - there's always that.
Still, what a house
to leave behind!
I held it
Still, what a house
to leave behind!
I held it
like the wisest of books
and imagined
its travels toward my hand.
And now, your hand.
and imagined
its travels toward my hand.
And now, your hand.
ok, maybe this is a little heavy, but I like it:
There is No Going Back (Wendell Berry)
No, no, there is no going back.
Less and less you are
that possibility you were.
More and more you have become
those lives and deaths
that have belonged to you.
You have become a sort of grave
containing much that was
and is no more in time, beloved
then, now, and always.
And so you have become a sort of tree
standing over a grave.
Now more than ever you can be
generous toward each day
that comes, young, to disappear
forever, and yet remain
unaging in the mind.
Every day you have less reason
not to give yourself away.
Less and less you are
that possibility you were.
More and more you have become
those lives and deaths
that have belonged to you.
You have become a sort of grave
containing much that was
and is no more in time, beloved
then, now, and always.
And so you have become a sort of tree
standing over a grave.
Now more than ever you can be
generous toward each day
that comes, young, to disappear
forever, and yet remain
unaging in the mind.
Every day you have less reason
not to give yourself away.
Only Once (Denise Levertov)
All which, because it was
flame and song and granted us
joy, we thought we'd do, be, revisit,
turns out to have been what it was
that once, only; every invitation
did not begin
a series, a build-up: the marvelous
did happen in our lives, our stories
are not drab with its absence: but don't
expect to return for more. Whatever more
there will be will be
unique as those were unique. Try
to acknowledge the next
song in its body -- halo of flames as utterly
present, as now or never.
All which, because it was
flame and song and granted us
joy, we thought we'd do, be, revisit,
turns out to have been what it was
that once, only; every invitation
did not begin
a series, a build-up: the marvelous
did happen in our lives, our stories
are not drab with its absence: but don't
expect to return for more. Whatever more
there will be will be
unique as those were unique. Try
to acknowledge the next
song in its body -- halo of flames as utterly
present, as now or never.
1 comment:
Love the Wendell Berry--so apt for all of us in our 50s no matter one's life circumstances.
To that end, "yes" to the tattoo. If it speaks to you, then do it. As the poem says,
"Every day you have less reason
not to give yourself away."
...or to do the things that speak to you.
Great post! And I hope you find the power of some blinding light soon.
xo Lisa K
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